London Daily

Focus on the big picture.
Saturday, May 31, 2025

Dravet syndrome Devon girl, resuscitated 100 times

Dravet syndrome Devon girl, resuscitated 100 times

A nine-year-old girl has had to be resuscitated by her mother more than 100 times due to a rare life-limiting form of epilepsy.

Sam Slocombe from Devon is campaigning to raise awareness of her daughter Paige's condition, known as Dravet Syndrome.

She and her husband Mike said they hoped it would help to improve diagnosis and care for others.

The syndrome can cause multiple seizures both night and day.

It occurs in around one in every 15,000 live births and is one of the most treatment-resistant forms of epilepsy.

It means the family have to take vital medical equipment wherever they go.

Paige Slocombe with her family from Okehampton, Devon


Sam Slocombe said: "Paige stops breathing with her seizures, and wherever she goes, her medical bag goes with her. It contains very potent drugs... resuscitation equipment...

"These things play a vital role in keeping Paige alive. I have probably resuscitated her myself over 100 times," she said.


Electric shocks to brain


Paige, who lives in Okehampton, has had a device surgically implanted which stops around 250 seizures every day.

The Vagus Nerve Stimulator (VNS) implant works by sending small electric shocks to the brain.

There is a much higher risk of Sudden Unexpected Death in Epilepsy (SUDEP) compared with other epilepsies.

Sam Slocombe said: "We never know how long we've got with Paige so we just treat every day like it's our last."

Dravet Syndrome UK said by raising awareness it hoped more people can receive an earlier diagnosis and get timely access to the help they need.

Galia Wilson, chair, Dravet Syndrome UK said: "The availability of genetic testing has helped increase diagnosis and now there are newer, more effective treatments available too."

"But wider awareness is needed to bring attention to these advances if they are to bring real-life benefit to as many patients and their families as possible," she said.

Newsletter

Related Articles

0:00
0:00
Close
Satirical Sketch Sparks Political Spouse Feud in South Korea
Indonesia Quarry Collapse Leaves Multiple Dead and Missing
South Korean Election Video Pulled Amid Misogyny Outcry
Asian Economies Shift Away from US Dollar Amid Trade Tensions
Netflix Investigates Allegations of On-Set Mistreatment in K-Drama Production
US Defence Chief Reaffirms Strong Ties with Singapore Amid Regional Tensions
Vietnam Faces Strategic Dilemma Over China's Mekong River Projects
Malaysia's First AI Preacher Sparks Debate on Islamic Principles
White House Press Secretary Criticizes Harvard Funding, Advocates for Vocational Training
France to Implement Nationwide Smoking Ban in Outdoor Spaces Frequented by Children
Meta and Anduril Collaborate on AI-Driven Military Augmented Reality Systems
Russia's Fossil Fuel Revenues Approach €900 Billion Since Ukraine Invasion
U.S. Justice Department Reduces American Bar Association's Role in Judicial Nominations
U.S. Department of Energy Unveils 'Doudna' Supercomputer to Advance AI Research
U.S. SEC Dismisses Lawsuit Against Binance Amid Regulatory Shift
Alcohol Industry Faces Increased Scrutiny Amid Health Concerns
Italy Faces Population Decline Amid Youth Emigration
U.S. Goods Imports Plunge Nearly 20% Amid Tariff Disruptions
OpenAI Faces Competition from Cheaper AI Rivals
Foreign Tax Provision in U.S. Budget Bill Alarms Investors
Trump Accuses China of Violating Trade Agreement
Gerry Adams Wins Libel Case Against BBC
Russia Accuses Serbia of Supplying Arms to Ukraine
EU Central Bank Pushes to Replace US Dollar with Euro as World’s Main Currency
Chinese Woman Dies After Being Forced to Visit Bank Despite Critical Illness
President Trump Grants Full Pardons to Reality TV Stars Todd and Julie Chrisley
Texas Enacts App Store Accountability Act Mandating Age Verification
U.S. Health Secretary Ends Select COVID-19 Vaccine Recommendations
Vatican Calls for Sustainable Tourism in 2025 Message
Trump Warns Putin Is 'Playing with Fire' Amid Escalating Ukraine Conflict
India and Pakistan Engage Trump-Linked Lobbyists to Influence U.S. Policy
U.S. Halts New Student Visa Interviews Amid Enhanced Security Measures
Trump Administration Cancels $100 Million in Federal Contracts with Harvard
SpaceX Starship Test Flight Ends in Failure, Mars Mission Timeline Uncertain
King Charles Affirms Canadian Sovereignty Amid U.S. Statehood Pressure
Trump Threatens 25% Tariff on iPhones Amid Dispute with Apple CEO
Putin's Helicopter Reportedly Targeted by Ukrainian Drones
Liverpool Car Ramming Incident Leaves Multiple Injured
Australia Faces Immigration Debate Following Labor Party Victory
Iranian Revolutionary Guard Founder Warns Against Trusting Regime in Nuclear Talks
Macron Dismisses Viral Video of Wife's Gesture as Playful Banter
Cleveland Clinic Study Questions Effectiveness of Recent Flu Vaccine
Netanyahu Accuses Starmer of Siding with Hamas
Junior Doctors Threaten Strike Over 4% Pay Offer
Labour MPs Urge Chancellor to Tax Wealthy Over Cutting Welfare
Publication of UK Child Poverty Strategy Delayed Until Autumn
France Detains UK Fishing Vessel Amid Post-Brexit Tensions
Calls Grow to Resume Syrian Asylum Claims in UK
Nigel Farage Pledges to Reinstate Winter Fuel Payments
Boris and Carrie Johnson Welcome Daughter Poppy
×