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Sunday, Apr 05, 2026

Coroner Urges UK Government to Improve Severe ME Care

A UK coroner has called on Health Secretary Wes Streeting to address the severe lack of care for people with myalgic encephalomyelitis, following Maeve Boothby O’Neill's death. The report emphasizes the non-existence of specialized care and highlights a need for medical training and research funding. Maeve's parents criticize the failure of institutions to prevent her death and urge immediate action.
A UK coroner, Deborah Archer, has called on Health Secretary Wes Streeting to address the severe lack of healthcare for people with myalgic encephalomyelitis (ME), warning of potential future deaths without intervention.

This appeal follows the death of 27-year-old Maeve Boothby O’Neill in Exeter, who suffered from severe ME for over a decade.

Archer's report, believed to be the first of its kind for ME, highlights the non-existence of specialist care for ME patients, including the absence of any NHS or private beds specifically for severe ME treatment across England.

Archer emphasized the need for medical training on ME and increased research funding.

Maeve's parents, Sean and Sarah Boothby, support the report, criticizing the failure of existing institutions to prevent her premature death.

They urge immediate governmental and institutional action to prevent future tragedies.
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